ADAPT's Ten Worst States

May 14, 2004

Dear Advocate:

ADAPT will be ranking the 2004 "Ten Worst States" in providing home and community services and supports compared to nursing home and other institutional services. This ranking will be released in mid July, 2004.

This assessment will combine information taken from statistical data released to the public on state spending in various categories as well as the views of advocates in the states who experience "the good, the bad and the ugly" of our states long term care system.

To assist us in this ranking we would appreciate it if you would fill out the attached survey and return it to us by June 30, 2004. You can fax it to us or "cut and paste" into a E-mail message.

Your support will assist us in accurately ranking your state.

All individual responses will be confidential.

For an Institution Free America!

ADAPT
1339 Lamar Sq Drive Suite 101
Austin, Texas 78704
FAX 512/442-0522
Bob Kafka

HOME AND COMMUNITY SERVICES

STATE SURVEY - 2004 - ADVOCATE ASSESSMENT

• NAME:
• ADDRESS:
• CITY:
• STATE:
• ZIP:
• e-mail:
• PHONE:
• ORGANIZATION:
• STATE:

1. From your perspective would rank your state as:

1. in the top 10 states providing services and supports
2. in the top 20
3. in the top 30
4. in the top 40
5. one of the 10 worst

2. Would you rate your state's ongoing response to the Olmstead decision as:

1. excellent
2. good
3. fair
4. poor
5. bad

3. Would you rate your state's involvement of advocates and advocate organizations in the development and evaluation of community service programs as:

1. excellent
2. good
3. fair
4. poor
5. bad

4. Would you describe the amount of consumer direction in your community services programs as:

1. excellent
2. good
3. fair
4. poor
5. bad

5. If someone needs 30 hours of personal attendant services (PAS) and would like to move to your state, would you:

1. encourage them to come
2. warn them to go to another state
3. tell them about your long waiting lists

6. Does your state Nurse Practices Act allow delegation or assignment of traditional health/nursing tasks?

1. yes
2. no
3. other (please describe) _________________________________

7. Does your state pay a livable wage and/or benefits to personal attendants?

1. yes
2. no

8. Is your state pursuing a money follow the person concept to assist in moving folks from nursing homes and other institutions to the community?

1. yes
2. no

9. Please rank from 1-5 how services are provided to the populations listed below.

5=Excellent 4=Good 3=Fair 2=Poor 1=Bad

    a)  cognitive disabilities                              1  2  3  4  5
    b)  developmental disability - physical                 1  2  3  4  5
    c)  physical disability                                 1  2  3  4  5
    d)  mental health disability                            1  2  3  4  5
    e)  sensory disability                                  1  2  3  4  5
    f)  multiple disabilities - physical/mental             1  2  3  4  5

Thank you for taking the time to fill out this form.
Please return by June 30th:

ADAPT
1339 Lamar Sq Drive, Suite 101
Austin, Texas 78704
512/442-0522 fax
Bob Kafka